Wednesday, 29 April 2009
Welcome To My Blog
Welcome to my blog here i will share with you my thoughts,feelings,experience & information about ME/CFS and also Fibromyalgia hopefully will be of some help to you .Eventually I can use this as a forum once it is established.Basically you will encounter the problems ive hit by having this illness,the hurdles i have had to overcome ,and my life adapted to living with this illness.I will post information about the illness helpful links and any questions you may feel will be useful.Thanks for taking time out to pop by please leave a message.thanks judex
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Hi sweetie this looks great so glad you have done this as you know I have only just been diagnosed with me. I have no idea what it is to be honest all I got from doctors was basic information and to be honest I am really struggling with this. So to say I am glad I have you as a friend is just great all my love cheryl xx
ReplyDeleteGood luck with the new blog Jude. I will follow with interest. I have never had the condition diagnosed because of all the other problems I have had and all the symptoms have just been attributed to that, but I can empathise with you and other sufferes as many of the symptoms are very similar to those I suffer/have suffered over the years.
ReplyDeleteIts good to see you talk about it openly as it will help many other suffferes out there
rozzy xx
Hope you can enlighten some folks about these conditions with your blog Jude. I came to be diagnosed with CFS after having a long period of stress, both work and personal related. I was a Special needs teacher and used to get up in the morning, shower, dress and make a packed b/fast which i ate at work because if I sat down at home the tiredness would take me over in a huge wave and I would have had to fight not to go to sleep. On arrival at school i would eat my b/fast , then set about preparing work etc anything rather than be still, tho' doing things were actually adding to my fatique. The morning interval would find me crying in the cupboard as i just didn't know how I was going to get through the day. I ate my luch at my desk as, in the staffroom it was a hub of conversation and I just couldn't hold a conversation with someone with all this background noise,I found it difficult to concentrate on what was being said and also I found it difficult to 'think' out an answer to any question I was asked so I just isolated myself . CFS can and does affect your social life. I shall say more in a later post but will finish this one by saying that I was told that stress brought my CFS and now when faced with anything stressful, my CFS becomes worse. Thanks Jude. xx Doreen
ReplyDeleteHi Jude
ReplyDeleteI suffer from fybromalgia and have a number of the symptoms outlined above.
It makes everyday life a challenge, being tired but unable to sleep, needing to rush to the loo every 5 minutes especially after food. Not to mention the pain aspect which in itself is difficult but not as upsetting as going somewhere and realising you have to make a visit and that once you have visited another will follow shortly afterwards and there is always the likelihood of not getting there in time and having a little accident.
I would like to wish you success Jude and hope this becomes a haven for sufferers that can discuss their experiences without embarassment and the judgement of some that they are not real conditions or diseases.
Love Sue xxx
Thanks Jude for going to all the trouble of explaining ME and the other horrible health problems you have. I think a lot of people will have a lot more understanding of what it is like for people to live with this dilabating illness. I have borderline Fibromyalgia (which is similar to M.E.) and Polymyalgia so I know that all the things you listed that affect you are very real and true. I was lucky enough to get some relief from steroids just recently but hope I do have to stay on a high dose for long as there are side affects. Just wish I could find or hear of something that could give you relief dear.
ReplyDeleteLove and warm hugs.
Joyce (C.A.)
Meant to say hope I do NOT have to stay on a high dose for long. Sorry about the mistake
ReplyDeleteJoyce xx