Welcome to my blog here i will share with you my thoughts,feelings,information about ME/CFS and also Fibromyalgia hopefully will be of some help to you eventually can use this as a forum once it is established.Basically you will encounter the problems ive hit by having this illness,the hurdles i have overcome ,and my life adapted to living with this illness.I will post information about the illness helpful links and any questions you may feel will be useful.Thanks for taking time out to pop by please leave a message.

Thursday, 4 February 2010

Hello all,

Im so sorry ive not been on for while things have been so hectic.With my health mum being rushed into hospital,my daughter having her operation the start of the year is certainly a hospital one...lol.
I have recently had to come off my Modafinil medication papworth put me on some time ago.After having 3 month trial and getting severe side effects my gp took me off.I went back on them in November and now again have had to come off due to the side effects.I cant beleive im saying this but sleeping all day is far better than the side effects.
I was so interested to see the article lately about the poor girl who had ME for 17yrs,finaly with her nmums help died.It has certainly brought ME into the news once again whihc is good more understanding of this crippling life changing illness needs to be made aware & not classed as yupiee flu or god damn laziness.May she rest in peace ,i thank the l;ord i am no longer in that state although im much improved i still suffer daily some days not having the energy to get out my pjs just about come down stairs.
Thanks Heather for the interesting article about Norfolk/Suffolk ME Support and how they are now improving the services about time i will keep you updated if i hear anything .
hope your all keeping well as can be expected and promise to pop by more often and update you all
love n hugs judex


  1. Hi hun, I agree sleeping all day is much better than side effects from drugs. I've had some crazy side effects in the past. I've seen my doc again this morning & I'm now on some antidepressants as well as amitriptyline. Its rough times but I am thankful I am not totally bedbound....the thought terrifies me.
    I'm trying to catch up on blog hopping but I find I only have the energy to look mostly & dont always leave comments.
    Take care hugs x

  2. PS here's a link to my ME blogging. I have had to change it

    Me & ME

  3. Hi Jude

    Spotted this blog on my travels! I've been diagnosed with Fibro in 2004. I dont take any meds now through choice plus the fact my short term memory is chronic and I'd only forget them or forget I've already taken them already and I have enough brain fog without meds making it worse!

    Symptoms come and go and I have learnt to adapt but its unpredictable like my leg just gave way last year and I fell down the stairs injuring my wrist, that was bad for weeks as it does with fibro, a slight strain can affect an area for weeks on end. Have to laugh though I live in a bungalow so stairs are few here, typical!

  4. Hi all, Blog hopping seems to be all I'm good for today. Had a major scare the other night with cramps - so back on the mazzies and sevredol for a few days. I hate taking pills, but when needs must ... Just wanted to give everyone a big gentle hug so they know they're not alone xxx

  5. I have been told I have ME and Fibromyalgia I haven't heard of CFS I have many symptoms same as you I think I just got the label as they don't know whats wrong with me. I am just on pain killers and Diclofenic which doesn't help much (if at all) My teeth are all breaking which doesn't help as I am phobic about the dentist lol so I will pop here and try and find out more about my illness as all I have learned is all the symptoms (well I live with them I don't need to know that) I would like to know how I live with it and if there are any better drugs ot treatments out there that can help. This has been a blessing to find thanx for stopping by my blog

    Love Dawn xx